I’ve never done a blog before (nor navigated breast cancer
for that matter) but my beautiful and talented daughter Heather set up the
template and gave me a few short lessons so here we go! Actually Heather’s 10 year anniversary from
her own cancer, Hodgkins Lymphoma is this year so she’s not only a mentor that did her own blog, she’s walked this path before too.
I also have to mention Ruby, my granddaughter for her help in naming
this blog….love it! Yeah, oops is right!
So as a starter, here’s a recap of the events leading up to
starting Chemo tomorrow:
January 28, 2015:
Suspicious looking mammagram, followed immediately by an ultrasound,
then a biopsy. Viewing the ultrasound
screen, I saw an odd shape like a duck in water and knew intuitively that was no ducky, it
was cancer. This was probably the worst
day of all so far. I felt I was falling
deeper and deeper down a rabbit hole into a bazaar new life.
January 29, 2015: Driving with Heather, phone call
confirmed: Yep, it’s cancer. With what they knew, IDC (invasive ductal
carcinoma) stage one, grade three (most aggressive), 5% estrogen
receptive.
February 4, 2015: Surgery Lumpectomy with removal of the sentinel
lymph node. The tumor was larger than first thought and it had infected half
the node. Now it’s staged at 2B, grade 3, 10% estrogen receptive.
February 9-27: A
series of tests including a whole bone scan and contrast CT scan, luckily nothing
definitive detected. There were also 2nd
and 3rd oncology opinions, and lots of consulting with my best
friend Marietta, a functional nutritionist. So many ups and downs emotionally, with spontaneous unexpected bouts of crying in between activities. Honestly, I'd be singing one moment and crying the next, never knowing quite when that would happen.
Meanwhile, starting February 14 my kitchen remodel officially began after months of planning.
With the kitchen wall coming down and the interior completely demolished, it
felt very much like a metaphor of how my life was taking shape.
How does one get through this? My loving family and you guys, my friends are my
angels. I already am experiencing the
gift of angels around me wanting to help, offering encouragement and
lifting me up. My daughter Holly, my beautiful angel, has
taken on a motherly role, going to all the appointments with me and helping with food
in my temporary camp kitchen. She has been the calm presence, clear and wise and so loving. Heather
continues to be my designer for the new kitchen, keeping me laughing all the
way. She's ready to move onto a new living room for me now. :) She was there for the first
appointment with the oncologist taking copious notes while Holly held my
hand. While all this was going on, my
son Bryan was in Honduras on a long venture, rethinking his own life and
basking in island life. This gave all of
us great joy in imagining him being buffered from this difficult task of coming
to terms with the journey about to take place.
He arrived home February 24 and the next day joined us on this new path. Talk about culture shock!! He climbed right on board though with a "can do" attitude that "we're going to get through this". We are all happy he is back home, and can help hold the healing about to begin…for all of us.
Last week, with the encouragement of my dear friend Scott,
the four of us went on a Day long vision hike.
Scott leads vision fasts through the School of Lost Borders and set up
instructions for us. We started out at
dawn, hiked up into Annadel State Park where several paths diverge. There we stated our intentions for the day
and set off on our own, to meet back at 2PM and head down to Scott’s house in
Petaluma to “story-tell” our day. The
day for me was coming to full acceptance of letting go “life as I knew it” to
fully embracing this strange land of the unknown.
Sun shining on braids |
Clearly, the most symbolic thing representing my “old life” was my hair that I was told will disappear about 3 weeks from now. There, on the trails through Annadel I struggled with letting go of my hair, the chosen symbol of my life. The build up of grieve was palpable. Waves of anger, then denial, then profound sadness and tears, but then gradually acceptance began peaking through. I waited for the right time, and with great kindness, lovingly cut off those braids
Now it was time to turn to what was ahead and embrace this new path. I had brought with me an old death mask I had formed to my face over 10 years ago that I never decorated.
I painted and pasted hearts and pretty things, including lipstick to remind myself that hair isn’t the only beauty available (hey, not that my particular hair was all that great!) But I felt a deep happiness, much like the happiness I have felt in deep meditation during retreats and that has nothing to do with external events. An inside job.
The four of us met back at 2PM we had a bite to eat, all exhausted from the day, then headed down to Scott’s. The gift of Scott being able to mirror back each of our stories and how they interweaved to form a healing circle and partners in this journey was beyond words. In those two hours with him, listening deeply to each other, we bonded in a way that was, for me, quite profound. We gained strength from each other and I can honestly say we are all ready.
So, that’s the short of it.
Tomorrow is the first of four (hopefully only four) chemo treatments. I have embraced Chemo as my friend and it is what will ultimately give me life. It is strong medicine but it does work and is the path to wellness. I am hoping to meet each moment
with kindness and with patience, knowing the medicine is doing its job even if
it doesn’t feel like it.
It is very clear to me that my angels (that’s you) are the
most important part of this healing journey, whether its words of
encouragement, a laugh, going for a walk with me, a hug, food, flowers or whatever. Earlier on I was sent
this song; I feel like it’s my theme song for this journey. If you want to listen to this beautiful piece click here.
Your messages and voice and person mean a lot to me. My wings are strong right now but I'm not sure they always will be. I may need to borrow a pair of yours sometime! :)
Please....leave comments here or email me. Love to you all!
Angel Larry here.
ReplyDeleteThanks for including us in your journey.
May it be a fruitful one, hair or no.
You are held in my mind/heart.
thanks Angel Larry!
DeleteThis comment has been removed by a blog administrator.
ReplyDeletegood move Jocelyn! the chemo can't take away your hair if you gave it up willingly. thats looking fear fully in the face and saying I'm not afraid, no big deal, I'm in charge not you.what a beautiful start of your journey, setting a firm foot down letting fear know who's boss. loving you, I'm here whenever you should need me, blessings and visualisations of full good health. Jacob
ReplyDeleteThanks Jacob!
Deletexxx
ReplyDeleteI have no doubt with your inner strength and healthy mind AND body you will get through this in some kind of amazing way. In addition to this with the care and completely loving support you get from Heather, Holly and Bryan...'you got this sista'. I'm totally so proud to be your sister. Love you.
ReplyDeletethanks Joan, hope to see you this weekend!
DeleteMy third try to comment-LOVE your blog... and your strength. We are victors, not victims. Over 25 years since my breast cancer diagnosis. I want to hang out with you when you have time. Sending love, Rosemary
ReplyDeleteDear Jocelyn,
ReplyDeleteThat is the beautiful and powerful blog I have ever read! You go girl!
I love the way the kitchen remodel fit in with the whole process. A true makeover!
You are truly blessed to have such a close family and wide circle of friends.
Please get over yourself and call me when you need food or a massage or empathy..
I look forward to hearing more of your journey.
Thinking of you with love,
Janice
Just getting this message today Janice. Thank you and no offense taken! I would love to "get over" this cancer thing. And you know how hard it is to ask for help! I know you are there for me though. Love you.
DeleteThanks so much for sharing your journey, Jocelyn. The photograph of your braids brought tears to my eyes. What courage and heart you have! I'm honored to be one of your angels and will support you in anyway I can. May all the love and care you have extended to others come back to you a thousandfold as you walk this journey. Much love and big warm hugs, Nancy
ReplyDelete